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Judes (not verified)

6 years 10 months ago

Man o man! I’m fighting cancer. Fibromyalgia, Diabetes, arthritis, ddd, and at that time rls. I was also fighting the change. Lord I was so miserable. My dr wouldn’t send me to any specialists because everything could be a side effect of chemo.... finallly having finished chemo and radiation I’m finally getting help. The only thing that helped me was a heating pad or going outside and doing bicycle excersizes while in a chair. Hot flashes and legs scissor kicking beyond the width of my queen size hospital bed I thankfully inherited.... I was so sleep deprived that I lost my 9 year job, lost my house because Kaiser told me it was all in my head. Go figure. At times I would wake with my waist and bum flying with the legs, arms too. So a warm shower( if nothing else it helps take ones mind off even for 5 minutes) and heating pad. That was all. Period. Sometimes I would take my pain medication and on 30 minutes it’s gone.

Fast forward to today. Neurologist. God bless the man! My other useless pm ( now
my FORMER pm) gave me the lowest dose of pramipexole. She said it was the highest dose. Once again she was wrong. My neurologist doubled the dose! Then raised it one more time. Ask to try pramepexole. They might be able to try you on it based on your medical history. Now I only get the heebie jeebies as I called them. Even then I can still fall asleep. But I made add ivory soap to the bed if I ever have to max out pramipexole. Lol . And I do enjoy pickles now and then. I offer my advice as I did not see that medication in reading with keen interest the medications and crazy solutions. I have a friend who is on the max dose and is getting the symptoms again. But ask about it at your pm.

Have a good day to all! May rls behave a for a good nights sleep.

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